A Cure for Bassen Kornzweig Foundation

A Cure for Bassen Kornzweig Foundation is dedicated to education, research and support for Bassen Kornzweig Syndrome. We are dedicated to the diagnosis, treatment, and cure of Bassen Kornzweig Syndrome.

Current date/time is Mon Nov 23, 2009 10:37 am


A Cure for Bassen Kornzweig Foundation's Offical Forum
Welcome to the A Cure for Bassen Kornzweig Foundation's offical forum where you hope that you have a seat learn something, spread the word, and enjoy.
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  • Who We Are


    This is to inform you of who we are and why we are here.
    2 Topics
    2 Posts
    Sat Sep 12, 2009 8:15 pm
    AdminWho we are

  • Introduce yourself


    Please take the time to introduce yourself and the rare disease that you have so that we may know how to help you, get to know you and your story.
    2 Topics
    7 Posts
    Wed Nov 18, 2009 7:57 am
    Admindaughters story

  • Rare Disease Registry


    Please post what rare or orphaned diseases you or your child/ren have here.
    Moderator: Moderators
    1 Topics
    1 Posts
    Sun Sep 13, 2009 4:11 pm
    AdminJamil 3 Years Old

  • Medical Condition Registry


    Please post your none rare disease condition here.
    Moderator: Moderators
    1 Topics
    1 Posts
    Sun Sep 13, 2009 4:13 pm
    AdminMedical Conditions

  • Extra


    This is the forum to have fun and off topic stuff.
    1 Topics
    1 Posts
    Sun Sep 13, 2009 3:58 pm
    AdminWhat do your kids do for fun when they are sick?

  • Birthdays


    Please post your child/ren's birthdays here as well as yours and that of your families so we can give you your congrats!
    Moderator: Moderators
    1 Topics
    1 Posts
    Sun Sep 13, 2009 4:17 pm
    AdminThe Hoffner-Hooper Family

  • RIP


    Please post the information concerning those who are no longer with us so that we may pay our respects and they can always be remembered.
    Moderator: Moderators
    1 Topics
    1 Posts
    Wed Sep 16, 2009 9:32 pm
    AdminPlease post your RIP here

  • Journals


    An area to post your own personal journal about daily life with someone sick.
    Moderator: Moderators
    1 Topics
    1 Posts
    Wed Sep 16, 2009 9:33 pm
    AdminNEW Journal Enteries Available
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Who is Online ?

In total there is 1 user online :: 0 Registered, 0 Hidden and 1 Guest
Most users ever online was 9 on Mon Jan 12, 2009 9:52 pm

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Members connected during last 24 hours : Admin

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